The National Disease Registration Service (NDRS) is internationally recognised for its data curation and expertise to analyse and interrogate data to provide evidence for clinicians, patients, academics, industry and others. We also have significant skills in data science and complex data processing systems.

NDRS incorporates the National Cancer Registration and Analysis Service (NCRAS) and the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS). For these population-based registration services, we collect and quality assure data from every patient in England diagnosed with these registerable conditions.

Job Description

This role offers an exciting opportunity for a Quality Assurance Officer to join the National Disease Registration Service (NDRS), specialising in developing data quality metrics for the National Congenital Anomalies and Rare Diseases Registration Service (NCARDRS).

In April 2015, Public Health England (PHE) transferred existing regional congenital anomaly registers in to the organisation as part of its implementation of a National Congenital Anomaly Registration service. The focus then moved to recruiting new registration teams to cover the 51% of births in England without congenital anomaly registration coverage to complete set-up of the new national service – NCARDRS. To date, the programme has focused on congenital anomaly registration, but we are now beginning development of the rare disease element of the programme.

Skilled in the use of Structured Query Language (SQL) to extract and analyse data, you will have the knowledge and experience of database design required to quickly understand NCARDRS data structures. You will need to be a highly organised and motivated individual who whilst being an excellent team player is capable of working independently when required. You will have a proven ability to prioritise work under the pressure of conflicting deadlines. You will need to be confident in communicating with staff of differing technical abilities, and possess excellent communication written communication skills.


  • Undertake regular monitoring of registration data to identify missing invalid, inconsistent and unusual data and bring findings to attention of the Quality Assurance (QA), Registration, Quality Control (QC), IT and or audit and analysis teams as appropriate
  • Investigate specific data quality issues, making proposals for their resolution and developing monitoring reports as required.
  • Play an active part in the QA Group suggesting and developing meaningful metrics and key performance indicators to drive improvement in the quality of registration data.
  • Acquire and maintain a thorough working knowledge of the current registration data pathway from data loading to analytical view; understanding the basic principles and procedures of disease registration by attending relevant training days. Create standard and bespoke reports on the quality of registration data nationally, to ensure a consistent and comparable registration process.
  • Be skilled in the use of Structured Query Language (SQL) to extract and analyse data from the NCARDRS (CARA) and NCRAS Database (Encore) to produce performance metrics and quality indicators
  • Contribute to internal discussions on changes in procedures or enhancements to structures for the collection, coding, storage and display of data.
  • In collaboration with NCARDRS registration staff and expert external partners, develop and maintain the NCARDRS coding standardisation guidance and Coding Tool.
  • Discuss and propose areas where additional training in Registration might be appropriate and assist in the monitoring of agreed changes.
  • Discuss findings with other functional teams when results indicate modifications to their processes and/or the structure of the database.

Option 3 – External

Open to all external applicants (anyone) from outside the Civil Service (including by definition internal applicants).

We welcome and encourage applications from everyone, including groups currently underrepresented in our workforce and pride ourselves as being an employer of choice.

To find out more about how we champion diversity and inclusion in the workplace, visit: PHE Website

On 18 August 2020, the Secretary of State for Health and Social Care announced plans to establish the National Institute of Health Protection and consult on the best future options for strengthening health improvement and other public health functions in the wider system. Public Health England and its employees will be in scope for transition to new organisations in Spring 2021. Any new or current employees working for Public Health England during this time, will receive appropriate consultation prior to any formal transfer taking place.

Applicants are strongly advised to use the criteria in the person specification (available online) as sub-headings in their application to make it clear how they meet each of the selection criteria. Please also see job description for competencies

Public Health England promotes diversity in the workplace and is an equal opportunities employer

For further details / informal visits contact:

Name Sylvia Stoianova Job title Data Manager Email address [email protected] Telephone number 01179 689236