Clinical Nurse Specialist in Paediatric Electrophysiology

Support children, young people and families with a new diagnosis providing written and verbal information regarding their diagnosis, symptoms, management and treatment plan (short and long term). Providing contact details for further support on discharge. Liaising with health visiting/midwifery/community nursing teams to ensure support and management plans are in place post discharge from the ward/PICU. Discuss support needed at school and nursery, providing tailored written care plans for each individual patient. Liaising with bedside nurse and education team about the potential need for basic life support training, depending on diagnosis. Liaising with ward nursing team regarding psychological or social care support required ensuring that continuity is maintained on discharge. Maintaining communication with named member of psychology team, CAHMS, safeguarding and named social worker post discharge. Liaise and communicate with hospital school for long term inpatients. Provide ad hoc teaching to bedside nurses when needed, signposting to written information when needed. Review discharge plans with medical team/ward ANP and meet with patients prior to discharge to ensure appropriate support and follow up is in place. Follow up therapeutic drug monitoring post discharge in community. Post discharge telephone call to families to check on medications, patient symptoms, investigations, wound healing and outpatient appointments. Support patients undergoing electrophysiology study (EPS), radiofrequency ablation (RFA), and permanent pacemaker (PPM) insertion. Ensuring clear documentation via EPIC for all patient interactions. Offer support and verbal/written information to patients listed for EPS, RFA and PPM insertion/revision (in conjunction with cardiology/inherited cardiac conditions nursing team if shared patient) at time of review in consultant outpatient clinics. Weekly reviews of post discharge ISLA wound images for post operative patients who have undergone PPM/ILR insertion. Screening of consultant and nurse led clinics to ensure appropriate investigations are carried out and ensuring follow up is arranged in an appropriate time frame. Offer further nursing care and education to patients seen in consultant led clinics that may need further information or support about their diagnosis and management. Offering and requesting nurse led transition appointments for teenage patients who will soon be transferring to adult services.Telephone consultations and remote patient support Telephone support to parents via work mobile and office phones this may involve managing symptoms/discussing new symptoms, being responsive to worries/concerns and advising accordingly, relaying the results of investigations (exercise tolerance tests, holter monitors, ECGs and cardiac MRIs), medication management and formulating and actioning management plans. Telephone triage for patients with new or increased/worrying symptoms. Requesting appropriate investigations and following up results. Escalating and signposting where appropriate - 111/999, A&E or electrophysiology consultants, consultant nurse. Coordinating AliveCor monitoring loaning and reviewing all AliveCor results from symptomatic patients in the community who are trying to document symptoms of arrhythmia. Discussing these results with the consultant team to ensure there is an appropriate management plan when necessary. Review holter monitor results sent from local services and outreach clinics that are seen within shared teams in the network. Ensuring abnormalities are flagged to consultant team, making appropriate treatment and escalation plans where necessary. Organise local investigations for families with local paediatricians, paediatricians with expertise in cardiology (PECs), GPs and health visiting/community teams. Draft reports and attend child protection conferences and core group meetings organised by local social care / authorities. Attend school visits as necessary. Working closely with colleagues in the pacing department to co-ordinate remote downloads of patients PPMs/ICDs. To review with pacing team the results of routine remote downloads, as well as downloads at times of worrying symptoms relaying these results to families. Supporting patients with letters in relation to housing, government benefits, schooling and exams, travel signposting when necessary. Service Development and improvement

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